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Meet Erin Drake Angelo

Erin is the founder and owner of  RX Ballroom Dance. She provides dance therapy to people with Parkinson's all over Orange County. Inspired by a grandmother who struggled with Parkinson’s, Erin combined her professional dance skills and teaching background to create Rx Ballroom Dance. Their mission is to use ballroom dance to preserve and enhance the quality of life in people who are confronting neurological conditions. The program consists of weekly ballroom dance classes specifically designed to engage both the body and mind to alleviate symptoms of Parkinson’s. Using choreography to learn these dances also helps to stimulate brain activity and improve memory recall. For all participants, ballroom dance helps with: Parkinson's Dance Therapy

  • Physical coordination and balance
  • Mental stimulation and memory recall
  • Social and emotional states growth

When you meet Erin, you will quickly see that her enthusiasm is contagious.  She loves what she does and welcomes not just people with neurological problems but their caregivers and/or spouses as well. She is proud to tell you that all her classes are 100% free.  RX Ballroom Dance is funded completely through donations.

Due to the Covid pandemic, Rx Ballroom is currently offering online Zoom Classes as an alternative to in person classes so members can stay active and continue dancing. You can get more information at Rx Ballroom Dance or email Erin at info@rxballroomdance.com

Meet Karen Skipper

Parkinson's Music Therapist

Karen Skipper is a Board Certified Music Therapist and the director of the Orange County Tremble Clefs. The Tremble Clefs is a therapeutic singing group that serves people with Parkinson's.  Karen's goals for her group are to:

  • Enhance and maintain vocal and physical skills through vocal exercise and movement
  • Promote interaction and communication within the Parkinson's community: caregivers and family as well as patients
  • Share music with others and promote a better understanding of Parkinson's disease.

It would be difficult to find one of Karen's clients who doesn't love singing with her group.  When her group shows up to an event, you can feel the joy in the room.  They truly show that music is not only good for the body and mind but the soul as well.  Karen demonstrates a passion for helping those with Parkinson's not only by leading the Tremble Clefs but by frequently speaking at support groups.  Her passion is obvious when you hear her.

Most recently, due to the Covid crisis, Karen has taken her group online which has enabled even more people with Parkinson's to join in from all over the world.  You can get more information at OCTremblClefs.com or email Karen at therapymom2@gmail.com.

"We look forward to singing with you."

Meet Gretchen Westgaard

Fighting Parkinson's in Orange CountyOrange County local, Gretchen Westgaard,  started her career in the fitness industry as a Pilates instructor.  When her mom was diagnosed with Parkinson's Disease, it seemed only natural that she would jump into the world of fitness for people with Parkinson's. After working with Ann Adams at Rock Steady Boxing Southern California, Gretchen decided to open her own Rock Steady affiliate.  She quickly got certified as a Rock Steady Boxing Coach and has been the owner of Rock Steady Boxing South OC for over four years.

RSB South OC classes are a blend of boxing,  cardio exercises, strength training and stretching. The class activities are designed to help improve balance, cognition, flexibility, vocal strength and even dexterity.   If you watch one of Gretchen's classes, you will not only notice the hard work but the laughter and smiles can not be ignored.

"Rock Steady South OC is a big family.  We laugh with each other and sometimes cry with each other but at the end of the day, we are there to support each other." You can reach Gretchen at southoc@rsbaffiliate.com

Fighting back at Rock Steady Boxing South OC

Meet Gary Ballard

Gary Ballard Parkinson's Coach
ROCK STEADY BOXING
RANCHO SANTA MARGARITA
Gary “Boom Boom” Ballard, former World Super Middle Weight Championship Fighter, has provided professional personal training services in Orange County, CA for more than 16 years.
Gary assists people battling Parkinson’s to take an active role in improving their well being with non-contact boxing inspired fitness training. Exercises are based on traditional boxing drills and designed to optimize agility, speed, endurance, balance, hand-eye coordination, and overall strength. While exercises are adapted to individual capabilities and fitness levels, they remain rigorous and enable participants to push past self-imposed limits of ability.
Gary's fighters are a determined group of men and women of varied ages and varied stages of Parkinson's.  The workouts are tough but Gary is always there motivating and pushing them to keep going.  He is as kind as he is tough.  You can contact Gary at Ballard Fitness.

Meet Tony Garrett

Tony Garrett Parkinson's TrainerTony Garrett  is a certified Rock Steady Boxing coach and a professional personal trainer. He has worked with the Rock Steady Boxing SC program, for the past 4 years at American Gym in Costa Mesa. There he worked with athletes in all stages of Parkinson's Disease.He also has additional professional training in: muay thai, boxing, kickboxing, and general strength and conditioning.
With his Rock Steady Boxing and personal training experience, his own boxing and muay thai background, he transitioned "Rock Steady Boxing SC" to "NeuroFit Boxing.” He has incorporated training methods that focus not just on the body, but on the brain.
He prides himself on being positive, supportive, and all about helping his athletes hit their fitness goals. Tony  “I would love to chat with you about how NeuroFit Boxing can benefit you, no matter where you are today.”  You can find out more about Tony at Neurofit Boxing.

Tony Garrett is the owner of Neurofit Boxing in Costa Mesa

Meet Claire McLean

Claire McLean PT, DPT, NCS has been serving people with Parkinson's in Orange County for more than ten years.  She is a physical therapist who specializes in Parkinson's and owner of Rogue PT and Wellness in Fountain Valley, California. Claire holds a doctorate in Physical Therapy from USC and did her neurologic residency through USC and Rancho Los Amigos.  On any given day, you may find Claire assessing patients one-on-one or running a variety of classes in her gym.  She is a PWR! Moves certified instructor and teaches not only people with Parkinson's but other therapists and  fitness professionals.  Claire is a firm believer in the concept of exercise is medicine and hard work paying off and you will not only see hard work in her classes but you will see people living well with PD and improving their quality of life on a daily basis. Claire doesn't just stop at exercise, she is often found teaching her clients about healthy eating for Parkinson's and talking at local support groups. Recently Rogue PT has launched a new online fitness program called Rogue in Motion.

Parkinson’s Skin Check

by Tom Sheppard

This took on real meaning for me a few days ago:

Melanoma is the deadliest form of skin cancer. In the early stages, Melanoma can be treated successfully with surgery alone, and survival rates are high, but after metastasis, survival rates drop significantly. Therefore, early and correct diagnosis is key for ensuring patients have the best possible prognosis. (From Cancer Biology and Therapy Journal)

GOOD NEWS – BAD NEWS

During a routine skin check, my dermatologist said there was a spot that she wanted to biopsy. Fine, I have heard that before and it was never a problem. A few days later, I got the get the call. The dermatologist said, “The results of the biopsy I did last week on your shoulder are back. I have good news and bad news. The bad news is, you have Melanoma, but the good news is, it is very small and we have discovered it early.”

The bad news was apparent to me, but the good not so much. After some research, the good news started to sound better. She caught it early and expected no more problems with that area. However, other spots could show up. The prescription for that is a skin check every three months.

A couple of days ago, I had surgery to remove the Melanoma. It was routine and took about an hour. The aftermath of the surgery is NO EXERCISE for two weeks. It was pretty clear that no compromise was forthcoming.

WHAT SCIENTISTS RESEARCH AND DOCTORS ARE FINDING

Studies suggest there might be a connection between Parkinson’s Disease and Melanoma.  My dermatologist said there have been more melanoma cases in her office since the pandemic started in March. Her colleagues are reporting the same. She isn’t sure why.  Also, she is seeing an increasing diagnosis of Melanoma in her Parkinson’s patients.

IF YOU HAVE PARKINSON’S, SEE A DERMATOLOGIST ANNUALLY!

Don’t count on your internist for a full head to toe skin check. The dermatologist I go to is very thorough.  It’s a hide and seek
game and you want somebody trained in the field. I am asking you to make that skin check appointment now and keep it.

This is not the report I wanted to see but I would rather see it now than a year from now.

Parkinson's Melanoma risk

MAKE THE APPOINTMENT – SEE THE DOC

Take the Challenge

by Lauren Simmons

We are now into month five of Covid related lockdowns and restrictions. How are you doing with it?  The doctors and scientists tell us to stay home to stay safe but we have also been taught that socialization and new activities are good for our brain, so what are we to do? Unfortunately, Parkinson's doesn't stop just because we are stuck at home. We still need to keep our bodies and brains active.

What is challenging you right now?

So what have been your biggest challenges during quarantine?  Are you getting enough exercise? Missing hugs from grandchildren and friends? Did you have to cancel summer travel plans? This is definitely a Parkinson's challengechallenging time and it may continue for a while so we need to do  something to stay well physically, mentally, and  socially.  We challenge you to add one new activity this month. (We dare you to try two). Try a new online exercise class, or learn a new skill like painting or knitting. There are a multitude of instructional videos online. Maybe you can join an online bookclub or cook a new recipe each week. How about schedule an hour a day to walk a new trail or in a new park? You could learn a new card game.  You can even play card games online.  Maybe you could play them with those grandchildren you are missing.

It's time to take the challenge!

Check out some of the ideas below.  When you talk to friends and they ask what you have been up to, dazzle them with your new interests and impress them with your enthusiasm. You can do this!  Join us in stepping outside our comfort zone. Take the challenge!  Don't forget to let us know what you are doing.  Maybe some of us would like to try the same thing that you are trying.  You can comment below or let us know on our Facebook page.  Let's leave that comfort zone behind and get started.

Brain Exercises

Hand Exercises

Join Tremble Clefs Singing Group

Learn to Line Dance with RX Ballroom Dance

Learn to Watercolor

Beginning Knitting

Zoom classes offered by The Susi Q Senior Center

Hearts, Pinochle or Bridge?  Try some online card games.

Communication Challenges with Parkinson’s and in Quarantine

by Lauren Simmons

Communication can be challenging for people with Parkinson's.  Hearing loss, masked expressions and soft voices can make things difficult. Our recent rules of 6-foot social distancing and wearing masks only compound the problem. At a recent venture to the grocery store, I realized how difficult it was to communicate in my usual way.  I no longer knew what someone meant when they stopped and nodded to me.  I couldn’t see their whole face.  Were they pausing to let me go in front of them?  Were they warning me not to get too close?  Were they smiling or grimacing? Likewise, others couldn’t see my facial expressions.   Here are some things to keep in mind and maybe help you communicate more easily.

Did you know that 70% of communication is non-verbal?  This includes body movement and orientation, hand gestures, vocal intonation, eye contact and facial expressions.  All of this is more difficult to interpret from a distance and from behind a mask. Now is a great time to bump up your verbal skills by working on speaking louder and with intent.  Singing and vocal exercises help a lot. Don’t let the stay at home order deter you. There are online programs to help you out.  Try joining a group like the Tremble Clefs or the Parkinson’s Voice Project.

Keep in mind, if people had trouble hearing you before, they will have even more trouble when your voice is muffled behind a mask.    You are likely to have more difficulty hearing them also. Don’t hesitate to ask someone to repeat themselves.  They may not realize how muffled their voice is behind the mask.  They won’t mind repeating themselves especially if you ask nicely.

Wait to talk until there are no distractions.  If the pharmacy clerk has his back turned or is there is an announcement going on overhead, it will be harder for them to hear you and for you to hear their answer. This is good practice at home also.  Instead of calling to your spouse from the other room, walk in and get their attention before speaking.   Be cognizant of background noises that may interfere like the dishwasher running or the T.V. being on.

Many of us are communicating over the computer these days using programs like Zoom, Google Groups, or Microsoft Teams.    There are a few things you can do to make communicating easier on both ends of the conversation.

If possible, use your computer as opposed to an iPad or phone.  The screen will be bigger and it will be easier to see the speaker.  We all do a bit of lip reading even if our hearing is perfect.  To make it easier for others to see your face, make sure you are sitting with good light on your face.  Also, if you’re the lipstick wearing type, put some lipstick on.  The contrast of your lips makes it easier for others to read your lips.

Using a headset that has a microphone or Airpods, will make your voice louder and clearer to those listening.  This is especially helpful if you have a soft voice.

If you wear hearing aids, find out if they have a blue tooth feature.  Using this feature can take the speaker’s voice right to you hearing aids.

Although not everyone with Parkinson’s, is a senior, the majority are. One third of people over age 65 have some hearing loss and this prevalence is even higher in seniors with PD.  It is a good practice to see an audiologist annually to get a hearing test and since so much of our communication is visual, it is a good idea to have an annual eye exam and make sure your prescription is up to date.

Happy communicating and may we all be able to see each other’s smiles in person soon!

 

 

 

Staying Connected at Home

Update:  May 2021

Although our country is opening back up following the Covid 19 Pandemic, some people may still want to access virtual groups and services from their home.  There are many options available to you below.

Online Parkinson's Exercise Programs

The Parkinson's exercise pros have really stepped up.  There are so many options available to you for working out at home.  You can really be working out with trainers from all over the world without leaving your home.

Tremble Clefs Online with Karen Skipper

Singing not only helps your voice,  but it is a great mood lifter and we can all use that.  Music therapist, Karen Skipper, of the O.C. Tremble Clefs is holding online sessions.  For information, please contact Karen at kmsmusic@cox.net.

Rogue in Motion Online PD Exercise and Wellness Classes

Claire has been offering in person classes for people with Parkinson's for over five years. She is now offering online memberships.   Rogue in Motion offers exercise classes, cooking classes, brain game classes and more.

Coach Me Strong

Coach Me Strong is a new one on one online exercise program that matches you up with a coach for a personalized program and an accountability partner.

Rx Ballroom Dancing

Our favorite dance teacher, Erin Angelo, is back in the studio but still offering virtual options.

Sunday Mornings with Twitchy Women

Sharon Krischer is bringing us together on Zoom every other Sunday morning at 10:00.  This fun group of women with PD is getting together for all different things, some Parkinson's related and some not.  Topics have included exercise, sketchbook journaling, drumming, and more.

PMD Alliance Live Online Support Groups and Webinars

The Parkinson and Movement Disorder Alliance offers many online support groups for people with Parkinson's, care partners, and family members.  They also offer live educational webinars and you can find a full library of recorded webinars on many subjects related to Parkinson's.

Parkinson Place

Although the Parkinson Place is located in Florida, they currently have many resources available online from exercise classes to support groups and educational events.  You have to sign up to be a member but it is free to anyone with Parkinson's and their caregivers.

UCSD Support Group Network

Whether you have Parkinson's, are a care partner, or are young onset, UCSD has a group for you.  There are many virtual meetings scheduled per month. Check their schedule here.

Orange County Calendar of Events

Stay up to date on the support groups and other events that are now happening virtually.

Fun Things to Try from Home

AARP Games Online - puzzles, cards and brain games

Clock Yourself - This exercise app will challenge your body and brain. The app does cost $1.99 but well worth it.

The Daily Mini - Challenge your friends to a daily mini crossword and see who can do it the fastest.

Join a Virtual Book Club - 9 online clubs to choose from

Lumosity - This app is sure to challenge your memory and attention and gives your brain a daily workout.

Online Nightly Opera from the Met - a different opera every night

National Parks Virtual Tour - take in the scenery from home

Online Parkinson's Exercise Classes - classes of all levels

Qigong-Tai Chi - online or in the park - San Clemente

Take a Virtual Tour of the Louvre   - next best thing to being there

Virtual Travel Talk - missing travel?  Experience the world from home.

Words With Friends - If brain games are your thing, this might be for you.

Online Parkinson's Forums/ Support Groups Can Keep You Connected from Home

We know it isn't the same as meeting in person but if your support group isn't meeting right now, you may want to consider joining a private Facebook Group for PWP.  There are many out there.  Below are just a few. You could also start your own private group just for your support group.

Parkinson's Disease Fighters United (PDFU)

Strongher Women Fighting Parkinson's Disease

Parkinson's Warriors

South OC Parkinson's Group

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