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PMD Alliance Learn Live Connect

A Deep-Dive In-Person Workshop for People Impacted by Parkinson’s

This is your chance to learn from and ask questions of leading experts in the movement disorder world. Let’s spark connections, get real and get curious about the road ahead, and receive practical advice for managing your PD journey.

Irvine: Learn. Live. Connect.®

Where: Hoag Hospital, Classrooms CC1 and CC2

3900 West Coast Highway

Newport Beach, CA 92663

When: Tuesday, May 2, 2023  

Arrivals and Exhibits: 12:30 PST

Program: 1:00 –3:45 PM PST

Speakers: Mindy Bixby, DO

Anusha Wijeyakumar MA, CPC, E-RYT

You’re invited! Anyone impacted by a movement disorder is welcome at this FREE event.

We provide these events at no charge to you because you deserve to feel empowered.

 

Register Here

 

Parkinson’s Connection

It’s a PD Hangout!  People with Parkinson’s and their care partners are welcome to drop by the Murray Center every Wednesday from

1:00-3:00. This is an informal time to have fun and hang out with others in the Parkinson’s community.  You can get creative with art activities, play games, try your hand at ping pong or just hang out.  Educational materials will be on hand if you have Parkinson’s questions.

If you are newly diagnosed and not sure where to turn next, please drop by.  It helps to meet others along the same journey and this is a great non-intimidating environment to talk with someone.

Many thanks to the City of Mission Viejo and the Murray Center for hosting the group.

Questions?  Contact Lauren Simmons at info@pdbuzz.com

Please note, there is no program on May 17th, 2023 due to a scheduling conflict at the Murray Center.

Home Safety and Fall Prevention Seminar

A free seminar by Rebecca Miller, MS OTR/L, owner of Deluxe Therapy Solutions.

Hosted at I AM Movement – Home of Rock Steady Boxing Irvine.

Wednesday 2/22 at 2 pm

17775 Main St. Suite E

Irvine, CA 92614

RSVP  at info@iam-movement.com

949-783-9803

San Juan Capistrano Support Group

This group meets weekly at:
Capo Boxing Gym
Camino Capistrano
San Juan Capistrano, CA
11:45 am every Tuesday
Contact Rudy Garcia for more information angel1437@att.net
People with Parkinson’s, care partners, friends and family are welcome to attend.  Capo Boxing is home to Ready to Fight, a Parkinson’s specific boxing program.  You do not need to be a member of the gym to attend the support group.

South OC Care Partner Virtual Support Group

This group is for care partners only. Meetings are on Zoom every other Monday at 4:00 PM Pacific Time.

The group is facilitated by Renee Marsh LMFT and Donna Clervi.  Please contact Donna at donnaclervi@gmail.com for the zoom link and more information.

Anaheim Support Group

This group is meeting in person the second Wednesday of each month at 500 Center St. in Anaheim from 10:00-11:30 am.  Call Joan Belanger for questions  714-827-2898.


South O.C. Parkinson’s Support Group

Socpsg

The South OC support groups meets the first Thursday of each month at 4:00 pm PST.  This group is for people with Parkinson’s, their caregivers, family and friends.  For guest speaker schedule or  more information, please go to Socpsg.com.


Location:

Norman P. Murray Community Center

24932 Veteran’s Way

Mission Viejo, CA

Huntington Beach Support Group

Meetings are held on second Tuesday of each month at 11:00.

All are welcome!

Location

Front Line Care Academy

16052 Beach Blvd. Set, 129

Huntington Beach, CA. 92647

Please RSVP  to Becky Kohl at 562-485-7982 or becky.kohl@brightstarcare.com

Sage Sojourns – February, 2021

You’re Only One Swim Away from a Good Mood

by Sage Bennett

 

I was diagnosed with Parkinson’s Disease, PD, five years ago around Valentine’s Day.  I am still coming to terms with what that means. Each day is a little excursion into the question: how can I live well with PD?

Before taking meds and exercising daily, I experienced limitations I do not have today.  Shortly after diagnosis, I decided to swim a few laps after a water aerobics class.  To my chagrin, instead of swimming without effort as I had done since childhood, I was a tangle of arms and legs awkwardly trying to coordinate a swimming stroke. It was as if my brain had forgotten  how to swim. swimAs I kept trying to swim, I breathed in water instead of air and coughed my way out of the pool, dejected and embarrassed.

Soon after I heeded my doctor’s advice: “Try this medication and follow these three best practices– Exercise. Exercise. Exercise.”  This prescription and the support of others in the PD community have helped me live more fully. Yesterday I enjoyed 45 minutes of carefree swimming. Even though the outside air was chilly the water was warm as I glided back and forth from one end of the pool to the other in effortless strokes of crawl, side, and then back stroke. I swam past pine trees on the left, palm trees on the right. Overhead a baby, blue sky held cumulus puffs of white. A brushstroke of long strands of cirrus clouds swept across the sky, as a rainbow of blue, green, and purple faintly appeared in its center, then disappeared. In the water my movements are fluid. Feeling at one with clouds, sky, and trees, I am grateful for these moments –and living well with PD.

Sage BennettBio

Sage Bennet, Ph.D lives in Laguna Woods with her wife, Sandy, and their two dogs, Chloe and Freddy. She teaches philosophy and world religions online and is the author of Wisdom Walk: Nine Practices for Creating Peace and Balance from the World’s Spiritual Traditions.

 

One Day or Day One

By Lauren Simmons and Tom Sheppard

We did it! We made it through 2020, and a new year has finally come. The beginning of the year is traditionally a time for resolutions, to set new goals, and form new habits. Given the last nine months, we think it might be time to go back to the basics. I often hear people say that they are going to make changes “one day.”  Let’s turn it around and make those changes on DAY ONE.
Think SMART when making your resolutions. The SMART tool for meeting a resolution helps in doing the things needed to better our Parkinson’s lives. Here are some tips for setting yourself up for success:

Make your resolution SPECIFIC instead of general:
General: “I’m going to be more social.”
SPECIFIC: “I’m going to call a friend two times a week.” 
Answer your what, when, why, who, and where questions.

Make it MEASURABLE. The result has to be measured.
How do you keep track of your progress and know you have arrived?

Make your goal ACHIEVABLE. Working up to walking a few miles a day may be more attainable than planning to run a marathon by June. If you are already exercising, think about what you can do to step it up a notch. Think realistically about what your situation is right now, and then challenge yourself.

Is it RELEVANT? As a person with Parkinson’s, what is relevant to maintaining our best health? What is important to you, and is this the right time?

TIME: set an “I did it” date.
Make a schedule. A schedule will help you make that target date. Are you planning to exercise three times a week? Choose the days and times and put them on your calendar. Want to learn a new skill? Mark off time on your calendar specifically for that activity.

START MOVING – IT’S DAY ONE