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Newly Diagnosed with Parkinsons?

If you are newly diagnosed with Parkinson's Disease, you may be feeling overwhelmed and not know where to turn.  You are not alone. We encourage you to connect with someone else in your local Parkinson's community.  It may help to talk to someone else going through the same thing. Some newly diagnosed people want to join a support group right away and others won't even consider it.  Don't hesitate to contact us and we can put you in touch with someone to talk to, either in a group or one on one.  We are not doctors or therapists, but people with Parkinson's and we are all in the same fight.  There are things you may be able to do to fight back and live better in spite of your PD. The information below highlights some of the things you can do to take charge of your health and live well with Parkinson's.

Jump Start: A special event for those newly diagnosed with Parkinson's

Jump Start is a free quarterly program held in Orange County in partnership with Rogue PT & Wellness.  You will learn the basics of Parkinson's from a Movement Disorder Neurologist and find out the benefits of exercise for people with Parkinson's from Claire McLean PT, DPT, Board Certified Neurologic Clinical Specialist.  You will also have the opportunity to explore many of the programs available to you in Orange County. Find more information here.

Parkinsons diagnosis

A Letter to My Patients on the Day They Were Diagnosed from Dr. Sarah King

"If I could turn back the clock and write a letter to every single one of my clients on the day they were diagnosed with Parkinson's, this is what it would say."

A Note From the Parkinson & Movement Disorder Alliance

This is often the toughest time. There’s no getting around it, and we’re sorry you have to wrestle with this truth. No one asks for this. We know that. You’ll never forget the day you hear the diagnosis. As you move through the clouds, all those thoughts and feelings, remember to give yourself a little credit...read more

A Letter to My Newly Diagnosed Self by Alan Cole

Wise words from Alan Cole PhD five years after his diagnosis.  Alan is the author of the popular blog PD Wise

Exercise, Exercise, Exercise

Where do I start?

Exercise is medicine and this rings especially true for the person with Parkinson's.  What should your exercise plan look like? Physical therapist Claire McLean will take you through your ideal exercise plan in this free video series.

Food for Thought: Diet and Nutrition in PD

Dr. Laurie Mischley ND, PhD, MPH is a clinical investigator with Bastyr University and practices at Seattle Integrative Medicine.  This video will give you a good overview of how diet can affect Parkinson's.  Dr. Mischley updates her research on a regular basis on her online Parkinson's School.

Davis Phinney Resources

The Davis Phinney Foundation has a number of excellent resources for those beginning their PD journey including a primer called Charting Your Course.

Resources for those Newly Diagnosed with Parkinson's Disease

Online Parkinson's School with Dr. Laurie Mischley

Learn about topics such as medication, nutrition, gut health, exercise, supplements, lab work and more.

The New Parkinson's Disease Treatment Book

This book, written by Dr. J. Eric Ahlskog gives a thorough explanation of Parkinson's and its diagnosis, symptoms and treatments.

Parkinson's 360

From the Michael J. Fox Foundation "Parkinson's 360 walks through the different symptoms, as well as the emotional and social changes that may arise at different points in the journey. It's a candid and relatable guide for patients and families living with Parkinson's."

Ending Parkinson's Disease

This book, written by Dr. Ray Dorsey, Dr. Michael Okun, Dr. Baas Bloem and Dr. Todd Sherer is a must read and a call to action for anyone affected by Parkinson's Disease.

Mediflix

Mediflix is now offering a series of short documentaries about Parkinson's.  Watch inspiring and informative stories about people living well with Parkinson's and  catch round table discussions with top experts in the field.

Watch here

Peer Support Programs

It often helps to talk to someone else who has been living with Parkinson's for a while.  There are several options to connect you with someone.  Find a program here.

Every Victory Counts

Every Victory Counts is a comprehensive manual that can answer many of your PD questions.  You can download the digital version or order a hard copy at no charge from the Davis Phinney Foundation.

Parkinson's Wellness Fund

The Parkinson's Wellness Fund helps those with Parkinson's pay for out of pocket PD related expenses.

Patient Emergency Kit

The Parkinson's Foundation offers a free Aware in Care kit which contains tools and resources to help people with Parkinson's during a hospital stay.  You can order your kit online.